
CRDN announces inaugural cohort of 2026 RAREvolution Scholars
Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.
News related to rare disease, including patient stories, new programs and initiatives, and more.

Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.

CRDN’s second Open Access Government article explores why data infrastructure must be treated as a core foundation of rare disease diagnosis, care, and discovery in Canada.

CRDN has launched a new scholarship resource to help students and families affected by rare diseases discover educational funding opportunities from across Canada.

CRDN has launched the RAREvolution Scholarship Program, the first pan-Canadian, pan-rare disease scholarship initiative to support students living with rare diseases as they pursue post-secondary education.

CRDN has submitted a response to Health Canada, highlighting four key recommendations to ensure Canada’s clinical trial regulations are modern, proportionate, and supportive of rare disease research.

CRDN’s latest Open Access Government article explores why improving rare disease diagnosis in Canada requires not only broader access to genomics, but a more coordinated, learning-oriented health system.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.

CRDN participated in a two-day Alberta Rare Disease (RD) Design Framework workshop to develop recommendations to help guide the creation of a comprehensive care framework in Alberta.
CRDN participated in annual NMD4C investigator meeting to share insights and explore synergistic efforts in the innovative therapy space in Canada.

CRDN is hosting a virtual townhall on October 31 to provide an update on the co-development of its strategic plan.

Daniel Kinchlea, a 10-year-old Canadian rare disease patient, embodies resilience and hope in the face of living with an undifferentiated autoinflammatory condition.

This comprehensive calendar is a one-stop-shop for rare disease-related happenings in Canada and beyond, including webinars, workshops, conferences and more.

Learn more about the inaugural RareKids-CAN conference and how the network is transforming clinical trials for pediatric rare diseases in Canada.