Publications & Media
Explore CRDN publications, reports, articles, media features, and strategic outputs that help advance rare disease care, research, policy, and collaboration in Canada.
Articles
Commentary and thought leadership published by CRDN and partners.
ARTICLE
2026
Rethinking rare disease diagnosis in Canada
Open Access Government
Explores the challenges of rare disease diagnosis in Canada and the need for connected systems, stronger coordination, and a genomics-informed approach.
ARTICLE
2025
Connecting Canada for rare disease care and research
Open Access Government
Highlights the need for stronger coordination across Canada’s rare disease ecosystem and outlines how CRDN is helping connect care, research, and lived experience.
Reports
Community reports and network updates that summarize CRDN’s progress.
REPORT
2026
Report to the Community 2025–2026: From Strategy to Action
Canadian Rare Disease Network
Highlights CRDN’s progress in strengthening partnerships, expanding initiatives, and moving from strategy to implementation.
REPORT
2025
Report to the Community 2024–2025: Building Momentum
Canadian Rare Disease Network
Captures CRDN’s progress in establishing the network, building partnerships, and shaping a strategic vision for the future.
Strategic Outputs
Plans and strategic resources that guide CRDN’s work.
STRATEGIC PLAN
A collaborative strategy for rare diseases in Canada
Canadian Rare Disease Network
CRDN’s strategic plan reflects a shared vision shaped through broad community engagement and outlines key priorities for rare disease research, care, and collaboration across Canada.
SUMMARY
Strategic Plan on a Page
Canadian Rare Disease Network
A concise overview of CRDN’s strategic priorities, designed as a quick reference for partners, community members, and collaborators.
CRDN in the Media
Media features and external coverage of CRDN initiatives.
MEDIA FEATURE
SCHOLARSHIP
2026
New scholarship aims to level the playing field for students living with rare diseases
Healthing
Healthing featured the RAREvolution Scholarship and the barriers young people living with rare diseases can face when pursuing post-secondary education.