Publications & Media
Explore CRDN publications, reports, articles, media features, and strategic outputs that help advance rare disease care, research, policy, and collaboration in Canada.
Articles & Perspectives
Commentary and thought leadership published by CRDN and partners.
Oct 2026
Building rare disease diagnosis in Canada: People, expertise, and systems
Open Access Government
Jul 2026
Data infrastructure is the foundation of a learning health ecosystem: A Canadian challenge for rare genetic diseases
Open Access Government
In the Media
Media features and external coverage of CRDN initiatives.
Oct 2026
Beyond diagnosis and treatment: helping young Canadians with rare diseases live, learn and thrive
The Hill Times
May 2026
New scholarship aims to level the playing field for students living with rare diseases
Healthing
Strategy & Plans
Plans and strategic resources that guide CRDN’s work.
Strategic Plan 2025-2030
CRDN’s shared priorities and direction shaped through broad community engagement.
Community Reports
Explore our annual community reports to learn more about CRDN’s progress, partnerships, and impact.