Georgina Grahame-King shares her experience of living with reactive hypoglycemia as a teenager and learning to advocate for herself.

Katherine Govier and her daughter Emily Honderich share their dual perspectives on living with and supporting someone with Xia-Gibbs syndrome.

Dr. Manda Roddick’s journey of turning her lived experience with rare and complex conditions into research and advocacy that advances more equitable, person-centered care.

Neil Merovitch’s journey from a young patient navigating the complexities of rare diseases to a passionate advocate and researcher underscores the critical need for authentic patient engagement in healthcare and research.

Daniel Kinchlea, a 10-year-old Canadian rare disease patient, embodies resilience and hope in the face of living with an undifferentiated autoinflammatory condition.

The inspiring journey of Madison and Beth Vanstone, tirelessly advocating for public funding for the first cystic fibrosis modulator in Canada.