News related to rare disease, including patient stories, new programs and initiatives, and more.
CRDN has launched the RAREvolution Scholarship Program, the first pan-Canadian, pan-rare disease scholarship initiative to support students living with rare diseases as they pursue post-secondary education.
CRDN has submitted a response to Health Canada, highlighting four key recommendations to ensure Canada’s clinical trial regulations are modern, proportionate, and supportive of rare disease research.
CRDN’s latest Open Access Government article explores why improving rare disease diagnosis in Canada requires not only broader access to genomics, but a more coordinated, learning-oriented health system.
CRDN was pleased to attend the first RARE.Qc Scientific Day and Annual General Meeting in Montréal, where the Québec community gathered for a dynamic day of rare disease research, collaboration, and community connection.
CRDN welcomes the Government of Canada’s introduction of Bill S-5, the Connected Care for Canadians Act — a key building block for improved healthcare.
International collaboration and systematic reanalysis of genetic data are breaking down diagnostic barriers, providing long-awaited answers for families with rare diseases.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.
CRDN has launched the RAREvolution Scholarship Program, the first pan-Canadian, pan-rare disease scholarship initiative to support students living with rare diseases as they pursue post-secondary education.
CRDN has submitted a response to Health Canada, highlighting four key recommendations to ensure Canada’s clinical trial regulations are modern, proportionate, and supportive of rare disease research.
CRDN’s latest Open Access Government article explores why improving rare disease diagnosis in Canada requires not only broader access to genomics, but a more coordinated, learning-oriented health system.
This patient spotlight features Katherine Govier and her daughter Emily Honderich, who share their dual perspectives on living with and supporting someone with Xia-Gibbs syndrome.
CRDN was pleased to attend the first RARE.Qc Scientific Day and Annual General Meeting in Montréal, where the Québec community gathered for a dynamic day of rare disease research, collaboration, and community connection.
Dr. Manda Roddick’s journey of turning her lived experience with rare and complex conditions into research and advocacy that advances more equitable, person-centered care.
