Rare Disease Awareness Days
Explore key awareness days, weeks, and months recognized in Canada and around the world — and use them to support education, advocacy, and connection across the rare disease community.
This month’s awareness dates
Current month
June
Awareness days and weeks
24 awareness dates
Jun 1
Lymphangioleiomyomatosis (LAM) Awareness Day
Day
Jun 1
World Hypopara Awareness Day
Day
Jun 2
Sweet’s Syndrome UK Day
Day
Jun 2
Cancer Survivor’s Day
Jun 7
Transverse Myelitis Awareness Day
Day
Jun 9
Batten Disease Awareness Day
Day
Jun 10–16
Carers Week
Week
Jun 10
Intrahepatic Cholestasis of Pregnancy (ICP) Awareness Day
Day
Jun 10
Multisystemic Smooth Muscle Dysfunction Syndrome (MSMDS) Awareness Day
Day
Jun 10–16
Men’s Health Week
Week
Jun 11
World KBG Syndrome Awareness Day
Day
Jun 12
International DDX3X Day
Day
Jun 15
World Tay-Sachs Awareness Day
Day
Jun 16
Rare Chromosome Awareness Day
Day
Jun 16
Maple Syrup Urine Disease (MSUD) Awareness Day
Day
Jun 17
CDKL5 Awareness Day
Day
Jun 19
World Sickle Cell Day
Day
Jun 23
International Dravet Syndrome Awareness Day
Day
Jun 24
World Pneumothorax Day
Day
Jun 25
International Scoliosis Awareness Day
Day
Jun 28
International Neonatal Screening Day
Jun 28
International PKU Awareness Day
Day
Jun 29
Rare Chromosome Disorder Awareness Day
Day
Jun 29
World Scleroderma Day
Day
Month-long awareness campaigns
12 awareness campaigns
June
ALS Awareness Month (Canada)
Month
June
Antiphospholipid Syndrome (APS) Awareness Month
Month
June
CDKL5 Awareness Month
Month
June
Congenital Adrenal Hyperplasia (CAH) Awareness Month
Month
June
CMV Awareness Month
Month
June
Dravet Syndrome Awareness Month (US)
Month
June
Intrahepatic Cholestasis of Pregnancy (ICP) Awareness Month
Month
June
MdDS Awareness Month
Month
June
Men’s Health Month
June
Myasthenia Gravis Awareness Month
Month
June
National Congenital Cytomegalovirus Awareness Month
Month
June
Scleroderma Awareness Month
Month
Awareness calendar
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