
CRDN announces inaugural cohort of 2026 RAREvolution Scholars
Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.
News related to rare disease, including patient stories, new programs and initiatives, and more.

Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.

CRDN’s second Open Access Government article explores why data infrastructure must be treated as a core foundation of rare disease diagnosis, care, and discovery in Canada.

CRDN has launched a new scholarship resource to help students and families affected by rare diseases discover educational funding opportunities from across Canada.

CRDN has launched the RAREvolution Scholarship Program, the first pan-Canadian, pan-rare disease scholarship initiative to support students living with rare diseases as they pursue post-secondary education.

CRDN has submitted a response to Health Canada, highlighting four key recommendations to ensure Canada’s clinical trial regulations are modern, proportionate, and supportive of rare disease research.

CRDN’s latest Open Access Government article explores why improving rare disease diagnosis in Canada requires not only broader access to genomics, but a more coordinated, learning-oriented health system.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.

The RDI-Lancet Commission on Rare Diseases has officially launched, co-chaired by CRDN’s own Dr. Kym Boycott, to develop evidence-based policy solutions that enhance healthcare for Persons Living with a Rare Disease (PLWRD) worldwide.

CRDN proudly supports the WHA Resolution on Rare Diseases, aligning with our mission to advance care, research, and health equity for Canada’s rare disease community through global collaboration.

Neil Merovitch’s journey from a young patient navigating the complexities of rare diseases to a passionate advocate and researcher underscores the critical need for authentic patient engagement in healthcare and research.

CRDN invites the rare disease community to take part in a survey to share feedback on our draft strategic plan, helping us ensure it meets the needs of the entire community.

The Patient and Community Engagement Research (PaCER) program is launching its January 2025 cohort, focusing on how rare diseases impact families. This unique, fully sponsored opportunity invites parents from across Canada to collaborate and share their experiences.

CRDN, alongside MICYRN and RareKids-CAN, will support the newly launched European Rare Diseases Research Alliance (EDERA), ensuring that Canada’s rare disease landscape is aligned with international efforts.