News related to rare disease, including patient stories, new programs and initiatives, and more.
The inspiring journey of Madison and Beth Vanstone, tirelessly advocating for public funding for the first Cystic Fibrosis modulator in Canada.
Participate in CRDN’s Social Media Survey to share your valuable insights and help us create content that resonates with the rare disease community in Canada.
The Neuromuscular Disease Network for Canada (NMD4C) announces launch of a Canadian neuromuscular clinical trial network to increase the number of trials in Canada, enhance trial capacity, and support a network of clinician-researchers and their teams.
Muscular Dystrophy Canada (MDC) and partners launch central hub to streamline and connect patients and their families with healthcare professionals who specialize in neuromuscular disorder (NMD).
The courageous story of Sylvie Tress, navigating multiple painful conditions and the impact of late diagnosis on her health, while finding strength and purpose in advocacy.
February 29, 2024, marks a momentous day for the Canadian Rare Disease Network (CRDN) as we embark on our official launch, dedicating ourselves to advancing rare disease care, research, and innovation.
Subscribe to our monthly newsletter Rare Insights to receive the latest news, updates, and events.
