
CRDN announces inaugural cohort of 2026 RAREvolution Scholars
Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.
News related to rare disease, including patient stories, new programs and initiatives, and more.

Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.

CRDN’s second Open Access Government article explores why data infrastructure must be treated as a core foundation of rare disease diagnosis, care, and discovery in Canada.

CRDN has launched a new scholarship resource to help students and families affected by rare diseases discover educational funding opportunities from across Canada.

CRDN has launched the RAREvolution Scholarship Program, the first pan-Canadian, pan-rare disease scholarship initiative to support students living with rare diseases as they pursue post-secondary education.

CRDN has submitted a response to Health Canada, highlighting four key recommendations to ensure Canada’s clinical trial regulations are modern, proportionate, and supportive of rare disease research.

CRDN’s latest Open Access Government article explores why improving rare disease diagnosis in Canada requires not only broader access to genomics, but a more coordinated, learning-oriented health system.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.

The inspiring journey of Madison and Beth Vanstone, tirelessly advocating for public funding for the first cystic fibrosis modulator in Canada.

Participate in CRDN’s Social Media Survey to share your valuable insights and help us create content that resonates with the rare disease community in Canada.

The courageous story of Sylvie Tress, navigating multiple painful conditions and the impact of late diagnosis on her health, while finding strength and purpose in advocacy.

The launch of RDI’s Mapping Rare project shines a spotlight on Canada’s contributions to the global rare disease community.

February 29, 2024, marks a momentous day for the Canadian Rare Disease Network (CRDN) as we embark on our official launch, dedicating ourselves to advancing rare disease care, research, and innovation.