
CRDN announces inaugural cohort of 2026 RAREvolution Scholars
Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.
News related to rare disease, including patient stories, new programs and initiatives, and more.

Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.

CRDN’s second Open Access Government article explores why data infrastructure must be treated as a core foundation of rare disease diagnosis, care, and discovery in Canada.

CRDN has launched a new scholarship resource to help students and families affected by rare diseases discover educational funding opportunities from across Canada.

CRDN has launched the RAREvolution Scholarship Program, the first pan-Canadian, pan-rare disease scholarship initiative to support students living with rare diseases as they pursue post-secondary education.

CRDN has submitted a response to Health Canada, highlighting four key recommendations to ensure Canada’s clinical trial regulations are modern, proportionate, and supportive of rare disease research.

CRDN’s latest Open Access Government article explores why improving rare disease diagnosis in Canada requires not only broader access to genomics, but a more coordinated, learning-oriented health system.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.

CRDN is featured in Open Access Government, highlighting its efforts to connect care, research, and lived experience to strengthen support for people living with rare diseases in Canada.

CRDN has launched a Rare Disease Awareness Days Calendar, a go-to guide for key dates to help raise awareness, spark advocacy, and connect our rare disease community year-round.

CRDN provided Health Canada with national insights and recommendations to advance early and equitable rare disease diagnosis.

The Canadian Rare Disease Innovation Showcase brought together powerful stories and cutting-edge science—from AI diagnostics to patient-led research—to inspire bold action across Canada’s rare disease community

CRDN joined leaders from across Canada at the RareKids-CAN Conference and co-hosted a mini workshop on pre-clinical therapy development.

On Rare Disease Day 2025, CRDN participated in national events, fostering collaboration, raising awareness, and sharing updates on progress thus far..