
CRDN announces inaugural cohort of 2026 RAREvolution Scholars
Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.
News related to rare disease, including patient stories, new programs and initiatives, and more.

Fifteen students living with rare diseases from five provinces haven been selected for the first RAREvolution Scholars cohort.

CRDN’s second Open Access Government article explores why data infrastructure must be treated as a core foundation of rare disease diagnosis, care, and discovery in Canada.

CRDN has launched a new scholarship resource to help students and families affected by rare diseases discover educational funding opportunities from across Canada.

CRDN has launched the RAREvolution Scholarship Program, the first pan-Canadian, pan-rare disease scholarship initiative to support students living with rare diseases as they pursue post-secondary education.

CRDN has submitted a response to Health Canada, highlighting four key recommendations to ensure Canada’s clinical trial regulations are modern, proportionate, and supportive of rare disease research.

CRDN’s latest Open Access Government article explores why improving rare disease diagnosis in Canada requires not only broader access to genomics, but a more coordinated, learning-oriented health system.
Stay updated with the latest developments and events from the CRDN as we advance rare disease research and care across Canada.

CRDN’s latest Open Access Government article explores why improving rare disease diagnosis in Canada requires not only broader access to genomics, but a more coordinated, learning-oriented health system.

Katherine Govier and her daughter Emily Honderich share their dual perspectives on living with and supporting someone with Xia-Gibbs syndrome.

CRDN was pleased to attend the first RARE.Qc Scientific Day and Annual General Meeting in Montréal, where the Québec community gathered for a dynamic day of rare disease research, collaboration, and community connection.

Dr. Manda Roddick’s journey of turning her lived experience with rare and complex conditions into research and advocacy that advances more equitable, person-centered care.

CRDN welcomes the Government of Canada’s introduction of Bill S-5, the Connected Care for Canadians Act — a key building block for improved healthcare.
CRDN joined national leaders in medical genetics at the 2025 CAGC & CCMG Joint Conference in Banff, where members contributed to key discussions shaping the future of genomic medicine in Canada.