Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis, genetic testing, imaging, muscle biopsy, physiotherapy, cardiac and respiratory management, clinical trials, standards of […]
The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms, diagnosis, and management of lysosomal storage disorders, including Gaucher disease, Fabry disease, Pompe disease, and Niemann-Pick disease.
The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan: 🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to […]
Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices […]
The launch of the Canadian IgA Nephropathy Reference Centre, a new initiative bringing together patients, families, healthcare professionals, and researchers from across Canada. Come discover the Centre, its mission, and […]
The Canadian Association for the Study of the Liver (CASL), in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL), is hosting a national webinar focused on autoimmune and […]
Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. […]
The Symposium on AI for Health is a one-day event that brings together researchers, clinicians, industry partners, and policymakers to explore how artificial intelligence can accelerate biomedical innovation and advance […]
The MITO2026 International Conference, organized by MITO2i and MitoCanada, brings together people working across the mitochondrial disease research community. Mitochondrial disorders can affect multiple organs and systems and include many […]
This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.
Cystic fibrosis-related diabetes (CFRD) isn’t quite the same as other forms of diabetes and understanding the differences matters. Join Dr. Adèle Coriati and Dr. Rémi Rabasa-Lhoret on December 14 for […]
Convened by RareKids-CAN in partnership with the Conference Organizing Committee, the conference will bring together researchers, clinicians, manufacturers, industry leaders, regulators, trainees, and patient and family partners from across the […]
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!
