Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
HDRN Canada Discussion Session: From IDEA to Action: Three New Tools for Health Data Research
The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan:
🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to administrative health data research.
🔹 IDEA Benchmarking Tool — to help organizations assess current IDEA initiatives and identify opportunities for future action.
🔹 Core Questions Reflection Tool — to prompt researchers and data administrators to consider IDEA from the earliest stages of project design.
Hear the thinking behind each tool, how they were developed and how they can be put to work in real-world settings.
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!