Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Join the City of Toronto's Confronting Anti-Black Racism Unit, the Sickle Cell Awareness Group of Ontario, and Canadian Blood Services for two connected events focused on sickle cell disease (SCD) […]
The Till & McCulloch Meetings (TMM), hosted by the Stem Cell Network, is Canada’s premier stem cell and regenerative medicine research event, bringing together stem cell and regenerative medicine scientists, […]
A great opportunity to learn about the latest advancements in ARSACS research. This conference is sponsored by the Ataxia Charlevoix- Saguenay Foundation. The symposium, a scientific conference, is a satellite […]
From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey, Co-Lead Investigator & Policy […]
La CARES vous donne rendez-vous les 12 et 13 novembre 2026, à Québec, pour deux journées de rencontres, de partage et de réflexions autour de la santé en régions rurales […]
More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — […]
This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis, genetic testing, imaging, muscle biopsy, physiotherapy, cardiac and respiratory management, clinical trials, standards of […]
The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms, diagnosis, and management of lysosomal storage disorders, including Gaucher disease, Fabry disease, Pompe disease, and Niemann-Pick disease.
The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan: 🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to […]
Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices […]
The launch of the Canadian IgA Nephropathy Reference Centre, a new initiative bringing together patients, families, healthcare professionals, and researchers from across Canada. Come discover the Centre, its mission, and […]
The Canadian Association for the Study of the Liver (CASL), in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL), is hosting a national webinar focused on autoimmune and […]
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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