Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
A great opportunity to learn about the latest advancements in ARSACS research. This conference is sponsored by the Ataxia Charlevoix- Saguenay Foundation. The symposium, a scientific conference, is a satellite […]
From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey, Co-Lead Investigator & Policy […]
La CARES vous donne rendez-vous les 12 et 13 novembre 2026, à Québec, pour deux journées de rencontres, de partage et de réflexions autour de la santé en régions rurales […]
More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — […]
This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis, genetic testing, imaging, muscle biopsy, physiotherapy, cardiac and respiratory management, clinical trials, standards of […]
The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms, diagnosis, and management of lysosomal storage disorders, including Gaucher disease, Fabry disease, Pompe disease, and Niemann-Pick disease.
The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan: 🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to […]
Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices […]
The launch of the Canadian IgA Nephropathy Reference Centre, a new initiative bringing together patients, families, healthcare professionals, and researchers from across Canada. Come discover the Centre, its mission, and […]
The Canadian Association for the Study of the Liver (CASL), in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL), is hosting a national webinar focused on autoimmune and […]
Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. […]
The Symposium on AI for Health is a one-day event that brings together researchers, clinicians, industry partners, and policymakers to explore how artificial intelligence can accelerate biomedical innovation and advance […]
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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