Research as Care: Why Rare Diseases Matter for Europe’s Future
More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Events
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TREAT-NMD and the Muscular Dystrophy Association- LGMD Masterclass
This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis, genetic testing, imaging, muscle biopsy, physiotherapy, cardiac and respiratory management, clinical trials, standards of […]
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Canadian Symposium on Lysosomal Diseases
The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms, diagnosis, and management of lysosomal storage disorders, including Gaucher disease, Fabry disease, Pompe disease, and Niemann-Pick disease.
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HDRN Canada Discussion Session: From IDEA to Action: Three New Tools for Health Data Research
The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan: 🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to […]
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Defeat Duchenne Canada: Gene Therapy Education Night
Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices […]
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IgAN Canada Hub Launch
The launch of the Canadian IgA Nephropathy Reference Centre, a new initiative bringing together patients, families, healthcare professionals, and researchers from across Canada. Come discover the Centre, its mission, and […]
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CASL-CaNAL Autoimmune Liver Disease Case Spotlight Series Third Edition
The Canadian Association for the Study of the Liver (CASL), in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL), is hosting a national webinar focused on autoimmune and […]
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RareKids-CAN Coffee Chat
Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. […]
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AI for Health 2026
The Symposium on AI for Health is a one-day event that brings together researchers, clinicians, industry partners, and policymakers to explore how artificial intelligence can accelerate biomedical innovation and advance […]
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MITO2026 International Conference
The MITO2026 International Conference, organized by MITO2i and MitoCanada, brings together people working across the mitochondrial disease research community. Mitochondrial disorders can affect multiple organs and systems and include many […]
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ERDERA Joint Transnational Call 2027: Information Webinar
This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.
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CFRD in 30 Minutes
Cystic fibrosis-related diabetes (CFRD) isn’t quite the same as other forms of diabetes and understanding the differences matters. Join Dr. Adèle Coriati and Dr. Rémi Rabasa-Lhoret on December 14 for […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!