Events

Name: Stem Cell Network: Careers Beyond Academia: Journal Editing and Scientific Writing
Start: 2026-10-14T12:00:00-04:00
End: 2026-10-14T13:30:00-04:00

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.

September 2026
6th Western Canadian Neuromuscular Conference (WCNMC 2026)

September 25 @ 8:00 am - September 27 @ 5:00 pm

WCNMC 2026 will continue with its proud collaboration with Muscular Dystrophy Canada and the Neuromuscular Disease Network for Canada (NMD4C) to broaden reach and amplify impact. The WCNMC brings together clinicians, researchers, trainees, nurses, and allied health professionals for three days of learning, featuring parallel basic/translational science and clinical sessions, alongside case discussions and neuromuscular research presentations.
Rare Diseases International: Innovative Financing for Rare Diseases: From Concept to Implementation

September 29 @ 6:00 am - 7:00 am

This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility, governance, stakeholder alignment, and the concrete pathways countries and funders can use to adopt and sustain these mechanisms. The discussion will pay particular attention to how innovative financing can support the integration of rare diseases into […]
17th International Symposium on Sjögren’s Disease

September 29 @ 8:00 am - October 2 @ 5:00 pm

This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
CORD: Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways

September 29 @ 10:00 am - 12:00 pm

Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy, what can we learn from Phase 1, and what needs to be strengthened? This webinar will explore end-to-end readiness through Canadian experiences with hemophilia, thalassemia and sickle cell […]
Indigenous Caregivers Collective (ICC): Virtual Panel Indigenous Values in Care

September 29 @ 11:00 am - 12:30 pm

In acknowledgement of the National Day for Truth and Reconciliation, this virtual panel will centre the voices, experiences, and knowledge of Indigenous caregivers from across Canada. Members of the National Indigenous Caregiver Advisory will share their lived experiences and perspectives on caregiving, culture, community, and reconciliation.
National Day for Truth and Reconciliation: Anti-Indigenous Racism in the Emergency Department

September 29 @ 12:30 pm - 1:30 pm

The Indigenous Health Office invites you to attend "Anti-Indigenous Racism in the Emergency Department", a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
ERDERA: Regulatory Insights of Advanced Therapies Research & Development

September 30 @ 5:00 am - 6:00 am

This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research, two areas that raise specific regulatory considerations within the ATMP field.
October 2026
Defeat Duchenne Canada: Family Forum 2026

October 3 @ 8:00 am - October 4 @ 5:00 pm

Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts, share experiences, and build lasting friendships with others who understand the journey.
RareKids-CAN: Logistics of ATMP Workflows for Pharmacy Teams

October 6 @ 11:00 am - 12:00 pm

This webinar will provide a practical, high-level overview of how pharmacies handle Advanced Therapeutics Medicinal Products (ATMPs). ATMPs, such as gene therapy products, significantly differ from the traditional therapies (i.e., small molecule drugs, biologics, etc.). Therefore, pharmacies require tailored workflows from the initial storage, documentation and handling, , as well as chain-of-custody consideration.
NMD4C and MDC: CPD-Accredited Webinar | DM1 Clinical and Translational Research Updates

October 6 @ 5:00 pm - 6:00 pm

NMD4C and MDC Canada are pleased to invite you to a CPD-accredited webinar on DM1 Clinical and Translational Research Updates. This webinar is primarily targeted at Canadian clinicians, academics and trainees with an interest in neuromuscular diseases. NMD4C and MDC are providing organizational and technical support. This webinar is supported by Novartis through a restricted […]
RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers

October 14 @ 11:00 am - 12:00 pm

This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are, how they […]
Stem Cell Network: Careers Beyond Academia: Journal Editing and Scientific Writing

October 14 @ 12:00 pm - 1:30 pm

The Stem Cell Network and Medicine by Design, the academic division of CCRM, have partnered to host Careers Beyond Academia, a virtual career seminar series that will profile a wide variety of different careers available to trainees who hold a degree in the life sciences. The goal of this series is to help trainees understand […]