Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers
This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are, how they work, how they differ from traditional medicines, and the types of advanced therapies currently available or being studied. Participants will also learn how to assess what developments may be relevant to their condition, find clinical trials and other credible information, and start conversations with their healthcare team about emerging therapies
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HERE!