Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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CORD: Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways
Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy, what can we learn from Phase 1, and what needs to be strengthened? This webinar will explore end-to-end readiness through Canadian experiences with hemophilia, thalassemia and sickle cell disease, examining diagnosis, specialist care, access to therapies, disease management and patient support. We will consider what these experiences can teach us about the capabilities Canada needs to build and sustain as new rare disease therapies emerge.
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