Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Join ALS Canada for an inspiring panel on how people affected by ALS are sharing their lived experiences and turning their stories into meaningful legacies. Learn simple ways to document your journey, build connection through storytelling, and preserve your story for the future.
Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. These free sessions are designed for families, caregivers, and community members interested in learning more about pediatric rare diseases, the diagnostic journey, available supports, patient advocacy resources, and opportunities to participate […]
Join Global Genes virtually from September 9 – 11, 2026 and access high-impact sessions directly from your home or office. What’s included in the Live Stream: 2 Fireside Chats 6 General Sessions Keynote Talks Pitch Perfect Session Connect with advocates, researchers, and leaders shaping the future of rare drug development.
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.
Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted by cavernous malformation.
Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease.
This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme "The impacts of rare diseases – towards better inclusion". This awareness day aims to be a space for exchange, reflection, and sharing about the realities experienced by people living with rare […]
SCAGO is excited to bring our first-ever Sickle Cell Awareness Month Community Event to Thunder Bay in collaboration with NorWest Community Health Centres (CHC)! Join SCAGO for an afternoon of connection, education, and community as they come together to raise awareness and celebrate the strength of individuals and families impacted by sickle cell disease.
🔬 Thursday, September 24 CPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals, researchers, and invited network members. 🩺 Friday, September 25 Scientific Sessions — a full day dedicated to the latest PH research, clinical advancements, and collaboration among healthcare professionals and researchers. The day concludes with the […]
This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts, share experiences, and build lasting friendships with others who understand the journey.
Save the Date! Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference, happening October 18–20, 2026, in Calgary, Alberta!
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
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