Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
42 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Events
Calendar of Events
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The World Orphan Drug Congress is Europe's largest and most established orphan drug & rare disease meeting. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create groundbreaking progress. |
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IMPaCT and RareKids-CAN are bringing Canada’s maternal, pediatric, and rare disease research communities together for a three-day national conference in Montréal. |
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Join the City of Toronto's Confronting Anti-Black Racism Unit, the Sickle Cell Awareness Group of Ontario, and Canadian Blood Services for two connected events focused on sickle cell disease (SCD) and the inequities that continue to shape Black experiences of health care. |
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The Till & McCulloch Meetings (TMM), hosted by the Stem Cell Network, is Canada’s premier stem cell and regenerative medicine research event, bringing together stem cell and regenerative medicine scientists, clinicians, bioengineers, and ethicists, as well as representatives from industry, government, health, and non-profit sectors from Canada and abroad.
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A great opportunity to learn about the latest advancements in ARSACS research. This conference is sponsored by the Ataxia Charlevoix- Saguenay Foundation. The symposium, a scientific conference, is a satellite meeting of the 2026 ICAR Conference and is scheduled to begin the day before the start of ICAR. |
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From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans. 
La CARES vous donne rendez-vous les 12 et 13 novembre 2026, à Québec, pour deux journées de rencontres, de partage et de réflexions autour de la santé en régions rurales et éloignées. |
5 events,
More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — building momentum for a coordinated EU Action Plan, examining the Biotech Act’s role in strengthening Europe’s innovation base and competitiveness, and demonstrating what happens when […] 
This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis, genetic testing, imaging, muscle biopsy, physiotherapy, cardiac and respiratory management, clinical trials, standards of care and patient advocacy. As such, it may be of interest to neurologists, paediatricians, geneticists, physiotherapists, rehabilitation specialists, cardiologists, specialist nurses, care coordinators and other […] 
The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms, diagnosis, and management of lysosomal storage disorders, including Gaucher disease, Fabry disease, Pompe disease, and Niemann-Pick disease. |
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The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan: 🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to administrative health data research. 🔹 IDEA Benchmarking Tool — to help organizations assess current IDEA initiatives and identify opportunities for future action. 🔹 Core Questions […]
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Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices and clinical expertise, they’ll help translate complex science into clear, practical information you can use. |
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The launch of the Canadian IgA Nephropathy Reference Centre, a new initiative bringing together patients, families, healthcare professionals, and researchers from across Canada. Come discover the Centre, its mission, and its projects during a day of presentations, discussions, and networking, with a convivial lunch provided on site. |
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The Canadian Association for the Study of the Liver (CASL), in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL), is hosting a national webinar focused on autoimmune and rare liver diseases. The session features Dr. Aldo Montano-Loza of the University of Alberta and Dr. Gideon M. Hirschfield of Toronto General Hospital's Autoimmune and […] |
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Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions. |
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The MITO2026 International Conference, organized by MITO2i and MitoCanada, brings together people working across the mitochondrial disease research community. Mitochondrial disorders can affect multiple organs and systems and include many rare genetic conditions.
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The Symposium on AI for Health is a one-day event that brings together researchers, clinicians, industry partners, and policymakers to explore how artificial intelligence can accelerate biomedical innovation and advance RNA-based technologies. The symposium will highlight emerging research, foster cross-sector collaboration, and identify opportunities to translate scientific discoveries into real-world health impact. This event is […] |
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