Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy, what can we […]
The Indigenous Health Office invites you to attend "Anti-Indigenous Racism in the Emergency Department", a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada […]
This webinar will provide a practical, high-level overview of how pharmacies handle Advanced Therapeutics Medicinal Products (ATMPs). ATMPs, such as gene therapy products, significantly differ from the traditional therapies (i.e., […]
This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product […]
The Stem Cell Network and Medicine by Design, the academic division of CCRM, have partnered to host Careers Beyond Academia, a virtual career seminar series that will profile a wide […]
From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies - so that screening, diagnosis, eligibility, […]
Join in Montréal (or online) on October 19–20, 2026 for the second AEG2C Symposium. This event will bring together researchers, trainees, community partners, and patients to advance equity in genetics […]
Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for […]
Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
The World Orphan Drug Congress is Europe's largest and most established orphan drug & rare disease meeting. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one […]
IMPaCT and RareKids-CAN are bringing Canada’s maternal, pediatric, and rare disease research communities together for a three-day national conference in Montréal.
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
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