Events

Name: RareKids-CAN-Delivering Gene Therapy Trials: Understanding Clinical Workflows, Operations, and the Patient Journey
Start: 2026-07-22T12:00:00-04:00
End: 2026-07-22T13:00:00-04:00

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.

Webinars

July 2026
IMPaCT Webinar-Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials

July 9 @ 12:00 pm - 1:00 pm

Register today for IMPaCT's next webinar with Ami Baba, PhD, where she'll discuss Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials. ✅ Identify who needs trial reporting guidelines ✅ Introduce pediatric-specific reporting guideline extensions for trials and systematic reviews ✅ Describe how SPIRIT-C, CONSORT-C, TIDieR-C, and PRISMA-C can impact both upstream and […]
Kabuki Syndrome Foundation Live Webinar: Together for Progress

July 16 @ 10:00 am - 12:00 pm

Join the Kabuki Syndrome Foundation at their upcoming live webinar, Together for Progress, on July 16, 2026. You can look forward to the latest updates on treatment development, learn about new resources for families and clinicians, and discover what’s next in their global efforts to improve the health of everyone with Kabuki syndrome.
RareKids-CAN-Delivering Gene Therapy Trials: Understanding Clinical Workflows, Operations, and the Patient Journey

July 22 @ 12:00 pm - 1:00 pm

Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators, nurses, pharmacists, investigators, and other clinical research professionals. Their speaker Ana Stosic will provide a practical overview of the clinical workflows involved in delivering gene therapy clinical trials for pediatric rare diseases.

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Events

July 2026

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