Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
CORD is pleased to invite you to our upcoming webinar, The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada . Join patients, caregivers, clinicians, researchers, policy makers and health system leaders for a conversation on the real-world impacts of delayed diagnosis and fragmented care, and what Canada can do to reduce the burden […]
Join D2R for this hybrid seminar with Professor Mo Lotfollahi from the Wellcome Sanger Institute and the Cambridge School of AI in Medicine at the University of Cambridge about "Generative AI to Predict and Engineer Human Tissues and Cells".
Join the Kabuki Syndrome Foundation at their upcoming live webinar, Together for Progress, on July 16, 2026. You can look forward to the latest updates on treatment development, learn about new resources for families and clinicians, and discover what’s next in their global efforts to improve the health of everyone with Kabuki syndrome.
Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators, nurses, pharmacists, investigators, and other clinical research professionals. Their speaker Ana Stosic will provide a practical overview of the clinical workflows involved in delivering gene therapy clinical trials for pediatric rare diseases.
This session is designed to provide you with a clear understanding of the goals, an update on progress, and the next steps as planning advances. It will include a short presentation from Health Canada followed by a Question & Answer session.
Join on 24 July for a free webinar and explore how ethics applies across different research activities, illustrated through a real-world case study that brings the concepts to life.
Join SCAGO for an educational two-day summit bringing together researchers, clinicians, advocates, and community members all working to transform sickle cell care.
Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. These free sessions are designed for families, caregivers, and community members interested in learning more about pediatric rare diseases, the diagnostic journey, available supports, patient advocacy resources, and opportunities to participate […]
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.
Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted by cavernous malformation.
This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme "The impacts of rare diseases – towards better inclusion". This awareness day aims to be a space for exchange, reflection, and sharing about the realities experienced by people living with rare […]
🔬 Thursday, September 24 CPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals, researchers, and invited network members. 🩺 Friday, September 25 Scientific Sessions — a full day dedicated to the latest PH research, clinical advancements, and collaboration among healthcare professionals and researchers. The day concludes with the […]
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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