Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
The Till & McCulloch Meetings (TMM), hosted by the Stem Cell Network, is Canada’s premier stem cell and regenerative medicine research event, bringing together stem cell and regenerative medicine scientists, clinicians, bioengineers, and ethicists, as well as representatives from industry, government, health, and non-profit sectors from Canada and abroad.
From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms, diagnosis, and management of lysosomal storage disorders, including Gaucher disease, Fabry disease, Pompe disease, and Niemann-Pick disease.
The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan: 🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to administrative health data research. 🔹 IDEA Benchmarking Tool — to help organizations assess current IDEA initiatives and identify opportunities for future action. 🔹 Core Questions […]
Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices and clinical expertise, they’ll help translate complex science into clear, practical information you can use.
The Canadian Association for the Study of the Liver (CASL), in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL), is hosting a national webinar focused on autoimmune and rare liver diseases. The session features Dr. Aldo Montano-Loza of the University of Alberta and Dr. Gideon M. Hirschfield of Toronto General Hospital's Autoimmune and […]
The MITO2026 International Conference, organized by MITO2i and MitoCanada, brings together people working across the mitochondrial disease research community. Mitochondrial disorders can affect multiple organs and systems and include many rare genetic conditions.
Cystic fibrosis-related diabetes (CFRD) isn’t quite the same as other forms of diabetes and understanding the differences matters. Join Dr. Adèle Coriati and Dr. Rémi Rabasa-Lhoret on December 14 for CFRD in 30 Minutes, a short, practical webinar for people with CF, families and caregivers.
Convened by RareKids-CAN in partnership with the Conference Organizing Committee, the conference will bring together researchers, clinicians, manufacturers, industry leaders, regulators, trainees, and patient and family partners from across the full translational pipeline.
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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