Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — building momentum for a coordinated EU Action Plan, examining the Biotech Act’s role in strengthening Europe’s innovation base and competitiveness, and demonstrating what happens when […]
This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis, genetic testing, imaging, muscle biopsy, physiotherapy, cardiac and respiratory management, clinical trials, standards of care and patient advocacy. As such, it may be of interest to neurologists, paediatricians, geneticists, physiotherapists, rehabilitation specialists, cardiologists, specialist nurses, care coordinators and other […]
The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms, diagnosis, and management of lysosomal storage disorders, including Gaucher disease, Fabry disease, Pompe disease, and Niemann-Pick disease.
The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan: 🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to administrative health data research. 🔹 IDEA Benchmarking Tool — to help organizations assess current IDEA initiatives and identify opportunities for future action. 🔹 Core Questions […]
Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices and clinical expertise, they’ll help translate complex science into clear, practical information you can use.
The launch of the Canadian IgA Nephropathy Reference Centre, a new initiative bringing together patients, families, healthcare professionals, and researchers from across Canada. Come discover the Centre, its mission, and its projects during a day of presentations, discussions, and networking, with a convivial lunch provided on site.
The Canadian Association for the Study of the Liver (CASL), in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL), is hosting a national webinar focused on autoimmune and rare liver diseases. The session features Dr. Aldo Montano-Loza of the University of Alberta and Dr. Gideon M. Hirschfield of Toronto General Hospital's Autoimmune and […]
Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
The Symposium on AI for Health is a one-day event that brings together researchers, clinicians, industry partners, and policymakers to explore how artificial intelligence can accelerate biomedical innovation and advance RNA-based technologies. The symposium will highlight emerging research, foster cross-sector collaboration, and identify opportunities to translate scientific discoveries into real-world health impact. This event is […]
The MITO2026 International Conference, organized by MITO2i and MitoCanada, brings together people working across the mitochondrial disease research community. Mitochondrial disorders can affect multiple organs and systems and include many rare genetic conditions.
This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.
Cystic fibrosis-related diabetes (CFRD) isn’t quite the same as other forms of diabetes and understanding the differences matters. Join Dr. Adèle Coriati and Dr. Rémi Rabasa-Lhoret on December 14 for CFRD in 30 Minutes, a short, practical webinar for people with CF, families and caregivers.
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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