CORD: From Readiness to Action: The Capstone Consultation Before the Rare Readiness Scorecard Launch
Final Webinar in CORD’s 4-Part Summer Rare Disease Readiness Series
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Webinars
Events
-
-
-
ALS Canada: ALS Research and Clinical Trials 101 Q&A Drop-In
This monthly Q&A drop-in session is available for people living with ALS, their families, caregivers, and anyone close to someone living with the disease who is seeking information or might […]
-
ALS Canada: Storytelling and Legacy Building for the ALS Community
Join ALS Canada for an inspiring panel on how people affected by ALS are sharing their lived experiences and turning their stories into meaningful legacies. Learn simple ways to document […]
-
-
IMPaCT Webinar: European Pediatric Clinical Trial Networks and Infrastructure: Partnership and Funding Opportunities
The webinar will explore the landscape of pediatric trial networks in Europe, the Horizon Europe PRISM Clinical Trial Call, and practical lessons for developing and leading Horizon Europe consortium applications. […]
-
Health Data Research Network Canada: Quantifiable Indigenous Concepts: Increasing Precision of Population Analysis by Including “Indian Act” Legislation
Drawing on Canada’s 2021 Census of Population, Kienan will discuss Quantifiable Indigenous Concepts, which were developed to strengthen how Indigenous populations are identified and analyzed in quantitative data. He’ll also […]
-
RareKids-CAN Coffee Chat
Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. […]
-
Rare Diseases International: Innovative Financing for Rare Diseases: From Concept to Implementation
This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility, governance, stakeholder alignment, and the concrete pathways countries and funders […]
-
CORD: Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways
Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy, what can we […]
-
Indigenous Caregivers Collective (ICC): Virtual Panel Indigenous Values in Care
In acknowledgement of the National Day for Truth and Reconciliation, this virtual panel will centre the voices, experiences, and knowledge of Indigenous caregivers from across Canada. Members of the National […]
-
National Day for Truth and Reconciliation: Anti-Indigenous Racism in the Emergency Department
The Indigenous Health Office invites you to attend "Anti-Indigenous Racism in the Emergency Department", a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
-
ERDERA: Regulatory Insights of Advanced Therapies Research & Development
This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements, supporting responsible research and smooth […]
-
-
RareKids-CAN: Logistics of ATMP Workflows for Pharmacy Teams
This webinar will provide a practical, high-level overview of how pharmacies handle Advanced Therapeutics Medicinal Products (ATMPs). ATMPs, such as gene therapy products, significantly differ from the traditional therapies (i.e., […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!