RareKids-CAN Coffee Chat
Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. […]

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. […]
From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies - so that screening, diagnosis, eligibility, […]
EURORDIS is excited to introduce their 2027 heroes and unveil their new campaign materials. These webinars will also provide practical guidance and inspiration to help you plan impactful campaign activities […]
Join in Montréal (or online) on October 19–20, 2026 for the second AEG2C Symposium. This event will bring together researchers, trainees, community partners, and patients to advance equity in genetics […]
Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for […]
The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan: 🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to […]
Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne, sponsored by REGENXBIO, Roche Canada, and Solid Biosciences. Together with patient voices […]
The Canadian Association for the Study of the Liver (CASL), in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL), is hosting a national webinar focused on autoimmune and […]
Join other parents, caregivers, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. […]
This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.
Cystic fibrosis-related diabetes (CFRD) isn’t quite the same as other forms of diabetes and understanding the differences matters. Join Dr. Adèle Coriati and Dr. Rémi Rabasa-Lhoret on December 14 for […]
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!