This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
35 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Research Focused
Events
Calendar of Events
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This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility, governance, stakeholder alignment, and the concrete pathways countries and funders can use to adopt and sustain these mechanisms. The discussion will pay particular attention to how innovative financing can support the integration of rare diseases into […]
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Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy, what can we learn from Phase 1, and what needs to be strengthened? This webinar will explore end-to-end readiness through Canadian experiences with hemophilia, thalassemia and sickle cell […]
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In acknowledgement of the National Day for Truth and Reconciliation, this virtual panel will centre the voices, experiences, and knowledge of Indigenous caregivers from across Canada. Members of the National Indigenous Caregiver Advisory will share their lived experiences and perspectives on caregiving, culture, community, and reconciliation. |
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This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research, two areas that raise specific regulatory considerations within the ATMP field. |
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Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts, share experiences, and build lasting friendships with others who understand the journey. |
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This webinar will provide a practical, high-level overview of how pharmacies handle Advanced Therapeutics Medicinal Products (ATMPs). ATMPs, such as gene therapy products, significantly differ from the traditional therapies (i.e., small molecule drugs, biologics, etc.). Therefore, pharmacies require tailored workflows from the initial storage, documentation and handling, , as well as chain-of-custody consideration.
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NMD4C and MDC Canada are pleased to invite you to a CPD-accredited webinar on DM1 Clinical and Translational Research Updates. This webinar is primarily targeted at Canadian clinicians, academics and trainees with an interest in neuromuscular diseases. NMD4C and MDC are providing organizational and technical support. This webinar is supported by Novartis through a restricted […] |
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This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are, how they […]
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The Stem Cell Network and Medicine by Design, the academic division of CCRM, have partnered to host Careers Beyond Academia, a virtual career seminar series that will profile a wide variety of different careers available to trainees who hold a degree in the life sciences. The goal of this series is to help trainees understand […] |
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From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies - so that screening, diagnosis, eligibility, expertise, delivery, patient choice, monitoring and learning do not have to be rebuilt after each access decision? |
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Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference, happening October 18–20, 2026, in Calgary, Alberta! |
2 events,
Join in Montréal (or online) on October 19–20, 2026 for the second AEG2C Symposium. This event will bring together researchers, trainees, community partners, and patients to advance equity in genetics and genomics research across Canada and beyond. This symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine, CIHR […] |
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Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for their financial future. |
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Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.® |
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The World Orphan Drug Congress is Europe's largest and most established orphan drug & rare disease meeting. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create groundbreaking progress. |
3 events,
IMPaCT and RareKids-CAN are bringing Canada’s maternal, pediatric, and rare disease research communities together for a three-day national conference in Montréal. |
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