Sickle Cell Awareness Group of Ontario: Annual Summit 2026 Registration
Join SCAGO for an educational two-day summit bringing together researchers, clinicians, advocates, and community members all working to transform sickle cell care.
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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Events
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Cavernous Malformation Canada Clinical & Scientific Symposium
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only […]
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Cavernous Malformation Canada Patient & Family Conference
Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted […]
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SickKids: Neurovascular Family Education Day 2026
Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease.
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Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme "The impacts of rare diseases – […]
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Health Data Research Network Canada: Quantifiable Indigenous Concepts: Increasing Precision of Population Analysis by Including “Indian Act” Legislation
Drawing on Canada’s 2021 Census of Population, Kienan will discuss Quantifiable Indigenous Concepts, which were developed to strengthen how Indigenous populations are identified and analyzed in quantitative data. He’ll also […]
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2026 NMD4C Annual Meeting
Join NMD4C for a full day of dynamic discussions, research updates, and networking opportunities—just ahead of the 6th Western Canadian Neuromuscular Conference (WCNMC 2026). The agenda will feature a brief […]
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6th Western Canadian Neuromuscular Conference (WCNMC 2026)
WCNMC 2026 will continue with its proud collaboration with Muscular Dystrophy Canada and the Neuromuscular Disease Network for Canada (NMD4C) to broaden reach and amplify impact. The WCNMC brings together clinicians, researchers, trainees, nurses, […]
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Rare Diseases International: Innovative Financing for Rare Diseases: From Concept to Implementation
This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility, governance, stakeholder alignment, and the concrete pathways countries and funders […]
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17th International Symposium on Sjögren’s Disease
This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
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National Day for Truth and Reconciliation: Anti-Indigenous Racism in the Emergency Department
The Indigenous Health Office invites you to attend "Anti-Indigenous Racism in the Emergency Department", a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
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Defeat Duchenne Canada: Family Forum 2026
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!