Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease. 
Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted by cavernous malformation. |
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Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease.
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This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme "The impacts of rare diseases – towards better inclusion". This awareness day aims to be a space for exchange, reflection, and sharing about the realities experienced by people living with rare […] |
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Drawing on Canada’s 2021 Census of Population, Kienan will discuss Quantifiable Indigenous Concepts, which were developed to strengthen how Indigenous populations are identified and analyzed in quantitative data. He’ll also draw on his lived experience as an Indigenous person represented in population datasets and examine the importance of appropriately representing the approximately 0.9 million people […] |
2 events,
WCNMC 2026 will continue with its proud collaboration with Muscular Dystrophy Canada and the Neuromuscular Disease Network for Canada (NMD4C) to broaden reach and amplify impact. The WCNMC brings together clinicians, researchers, trainees, nurses, and allied health professionals for three days of learning, featuring parallel basic/translational science and clinical sessions, alongside case discussions and neuromuscular research presentations.
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Join NMD4C for a full day of dynamic discussions, research updates, and networking opportunities—just ahead of the 6th Western Canadian Neuromuscular Conference (WCNMC 2026). The agenda will feature a brief network update, trainee and early‑career recognitions, flash talks, a health economics research showcase, and the following cross‑disciplinary and parallel clinical / pre‑clinical discussion sessions |
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3 events,This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
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This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility, governance, stakeholder alignment, and the concrete pathways countries and funders can use to adopt and sustain these mechanisms. The discussion will pay particular attention to how innovative financing can support the integration of rare diseases into […]
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The Indigenous Health Office invites you to attend "Anti-Indigenous Racism in the Emergency Department", a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD). |
1 event,
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts, share experiences, and build lasting friendships with others who understand the journey. |
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!
