CORD: From Readiness to Action: The Capstone Consultation Before the Rare Readiness Scorecard Launch
Final Webinar in CORD’s 4-Part Summer Rare Disease Readiness Series
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
National
Events
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ALS Canada: ALS Research and Clinical Trials 101 Q&A Drop-In
This monthly Q&A drop-in session is available for people living with ALS, their families, caregivers, and anyone close to someone living with the disease who is seeking information or might […]
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ALS Canada: Storytelling and Legacy Building for the ALS Community
Join ALS Canada for an inspiring panel on how people affected by ALS are sharing their lived experiences and turning their stories into meaningful legacies. Learn simple ways to document […]
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IMPaCT Webinar: European Pediatric Clinical Trial Networks and Infrastructure: Partnership and Funding Opportunities
The webinar will explore the landscape of pediatric trial networks in Europe, the Horizon Europe PRISM Clinical Trial Call, and practical lessons for developing and leading Horizon Europe consortium applications. […]
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SickKids: Neurovascular Family Education Day 2026
Please join SickKids for an educational event for patients, families, and care-givers featuring expert speakers on Moyamoya Disease.
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Health Data Research Network Canada: Quantifiable Indigenous Concepts: Increasing Precision of Population Analysis by Including “Indian Act” Legislation
Drawing on Canada’s 2021 Census of Population, Kienan will discuss Quantifiable Indigenous Concepts, which were developed to strengthen how Indigenous populations are identified and analyzed in quantitative data. He’ll also […]
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2026 NMD4C Annual Meeting
Join NMD4C for a full day of dynamic discussions, research updates, and networking opportunities—just ahead of the 6th Western Canadian Neuromuscular Conference (WCNMC 2026). The agenda will feature a brief […]
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6th Western Canadian Neuromuscular Conference (WCNMC 2026)
WCNMC 2026 will continue with its proud collaboration with Muscular Dystrophy Canada and the Neuromuscular Disease Network for Canada (NMD4C) to broaden reach and amplify impact. The WCNMC brings together clinicians, researchers, trainees, nurses, […]
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CORD: Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways
Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy, what can we […]
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Indigenous Caregivers Collective (ICC): Virtual Panel Indigenous Values in Care
In acknowledgement of the National Day for Truth and Reconciliation, this virtual panel will centre the voices, experiences, and knowledge of Indigenous caregivers from across Canada. Members of the National […]
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National Day for Truth and Reconciliation: Anti-Indigenous Racism in the Emergency Department
The Indigenous Health Office invites you to attend "Anti-Indigenous Racism in the Emergency Department", a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
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Defeat Duchenne Canada: Family Forum 2026
Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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HERE!