Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
The World Orphan Drug Congress is Europe's largest and most established orphan drug & rare disease meeting. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create groundbreaking progress. |
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A great opportunity to learn about the latest advancements in ARSACS research. This conference is sponsored by the Ataxia Charlevoix- Saguenay Foundation. The symposium, a scientific conference, is a satellite meeting of the 2026 ICAR Conference and is scheduled to begin the day before the start of ICAR. |
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More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — building momentum for a coordinated EU Action Plan, examining the Biotech Act’s role in strengthening Europe’s innovation base and competitiveness, and demonstrating what happens when […]
This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis, genetic testing, imaging, muscle biopsy, physiotherapy, cardiac and respiratory management, clinical trials, standards of care and patient advocacy. As such, it may be of interest to neurologists, paediatricians, geneticists, physiotherapists, rehabilitation specialists, cardiologists, specialist nurses, care coordinators and other […] |
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Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!