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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20260409T080000
DTEND;TZID=America/Edmonton:20260410T170000
DTSTAMP:20260409T065902
CREATED:20260401T192545Z
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UID:10070-1775721600-1775840400@canadianrdn.ca
SUMMARY:Ehlers-Danlos Syndrome (EDS) Research Symposium
DESCRIPTION:The Ehlers-Danlos Syndrome (EDS) Research Symposium is a two-day event\, April 9-10\, designed to bring together clinicians\, researchers\, students\, patients\, and community partners to examine current research\, clinical challenges\, and emerging approaches to the diagnosis and management of the Ehlers-Danlos syndromes.⁠\n⁠
URL:https://canadianrdn.ca/event/ehlers-danlos-syndrome-eds-research-symposium/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774621936518.jpg
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DTSTART;TZID=America/Edmonton:20260411T080000
DTEND;TZID=America/Edmonton:20260411T170000
DTSTAMP:20260409T065902
CREATED:20260401T192740Z
LAST-MODIFIED:20260401T192740Z
UID:10073-1775894400-1775926800@canadianrdn.ca
SUMMARY:Wilson Disease Association Spring Support Symposium
DESCRIPTION:Join the WDA Spring Support Symposium in Ann Arbor\, Michigan\, on April 11\, 2026\, to hear directly from patients and a caregiver as they share their real-life stories.
URL:https://canadianrdn.ca/event/wilson-disease-association-spring-support-symposium/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774553166245.jpg
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DTSTART;TZID=America/Toronto:20260416T080000
DTEND;TZID=America/Toronto:20260417T170000
DTSTAMP:20260409T065902
CREATED:20251113T230417Z
LAST-MODIFIED:20251113T230417Z
UID:9159-1776326400-1776445200@canadianrdn.ca
SUMMARY:3rd Symposium on Autoinflammation and Immune Dysregulation: “Celebrating Autoinflammation: On the Shoulders of a Giant
DESCRIPTION:This 3rd NIH Symposium on autoinflammatory and immunedysregulatory diseases marks a unique occasion to honor Dr. Dan Kastner\, the founding father of autoinflammation\, for his invaluable contributions in establishing and advancing the field.
URL:https://canadianrdn.ca/event/3rd-symposium-on-autoinflammation-and-immune-dysregulation-celebrating-autoinflammation-on-the-shoulders-of-a-giant/
CATEGORIES:Conferences,Healthcare,International,Patient Focused,Policy,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260423T050000
DTEND;TZID=America/Edmonton:20260423T060000
DTSTAMP:20260409T065902
CREATED:20260401T192204Z
LAST-MODIFIED:20260401T192204Z
UID:10064-1776920400-1776924000@canadianrdn.ca
SUMMARY:Innovative Financing for Rare Diseases
DESCRIPTION:How can innovative financing approaches improve equitable access to diagnosis\, treatment\, and care for people living with rare diseases? \nJoin RDI-International for a new webinar series bringing together health economists\, policymakers\, patient advocates\, and payers. Through a multistakeholder dialogue\, this series will examine key financing gaps and barriers to access\, map these challenges to relevant innovative financing mechanisms\, discuss enabling conditions for implementation\, and inform policy and advocacy actions.
URL:https://canadianrdn.ca/event/innovative-financing-for-rare-diseases/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773674001238.jpg
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