
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Healthcare
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Canadian Caregiving Summit 2025
A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada, the Canadian Caregiving Summit, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving […]
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Screen4Rare: Making AI Diagnosis Understandable
A co-creation workshop inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable, trustworthy and human.
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ISCT North America Regional Virtual Town Hall
Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. […]
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Pan-Canadian OMOP Common Data Model Engagement Event
This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond.
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ITINERARE Symposium 2025
The programme features experts from a variety of fields, ranging from basic and translational research to clinical application and the ethical, social and legal aspects of rare disease research.
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Hope on the Horizon: Trials, Treatments and Therapies for DMD, DM1 & MG
Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events! These webinars are geared […]
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Child Health and Wellness Seminar: The Evolution of Medical AI: Progress, Potential, and Responsibility
The Evolution of Medical AI: Progress, Potential, and Responsibility Speaker: Dr. Eman Rezk, PhD NSERC Postdoctoral Fellow Department of Electrical and Computer Engineering, University of Waterloo Host: Dr. Mohamed Eltorki, […]
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Can-Child Webinar: F-words Foundations Workshop
Interactive 3-hour F-words Foundations Workshop to explore how to bring the F-words for Child Development—Functioning, Family, Fitness, Fun, Friends, and Future—into everyday practice and life!
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CARELeuko Symposium 2025
The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada's Leukodystrophy Community to Drive Collaboration and Accelerate Research and […]
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36th International Symposium on ALS/MND
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic […]
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Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!