CORD: From Readiness to Action: The Capstone Consultation Before the Rare Readiness Scorecard Launch
Final Webinar in CORD’s 4-Part Summer Rare Disease Readiness Series
11 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Healthcare
Events
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Sickle Cell Awareness Group of Ontario: Annual Summit 2026 Registration
Join SCAGO for an educational two-day summit bringing together researchers, clinicians, advocates, and community members all working to transform sickle cell care.
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ACHRI: 2026 Maternal & Child Health Trainee Research Day
Led by the Alberta Children's Hospital Research Institute Trainee Association (ACHRITA) in partnership with the Owerko Centre and ACHRI, the event is open to undergraduate and summer students, graduate students, […]
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ALS Canada: ALS Research and Clinical Trials 101 Q&A Drop-In
This monthly Q&A drop-in session is available for people living with ALS, their families, caregivers, and anyone close to someone living with the disease who is seeking information or might […]
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ALS Canada: Storytelling and Legacy Building for the ALS Community
Join ALS Canada for an inspiring panel on how people affected by ALS are sharing their lived experiences and turning their stories into meaningful legacies. Learn simple ways to document […]
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RareKids-CAN: Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. These free sessions are designed for […]
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Cavernous Malformation Canada Clinical & Scientific Symposium
Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only […]
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Cavernous Malformation Canada Patient & Family Conference
Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers, interactive opportunities between patients and clinicians, and meaningful moments of connection and sharing with others impacted […]
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Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
This year, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme "The impacts of rare diseases – […]
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Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
🔬 Thursday, September 24 CPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals, researchers, and invited network members. 🩺 Friday, September 25 Scientific […]
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17th International Symposium on Sjögren’s Disease
This prestigious event, which brings together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease.
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!