Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies - so that screening, diagnosis, eligibility, […]
EURORDIS is excited to introduce their 2027 heroes and unveil their new campaign materials. These webinars will also provide practical guidance and inspiration to help you plan impactful campaign activities […]
Join in Montréal (or online) on October 19–20, 2026 for the second AEG2C Symposium. This event will bring together researchers, trainees, community partners, and patients to advance equity in genetics […]
Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for […]
Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
The World Orphan Drug Congress is Europe's largest and most established orphan drug & rare disease meeting. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one […]
IMPaCT and RareKids-CAN are bringing Canada’s maternal, pediatric, and rare disease research communities together for a three-day national conference in Montréal.
From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey, Co-Lead Investigator & Policy […]
Convened by RareKids-CAN in partnership with the Conference Organizing Committee, the conference will bring together researchers, clinicians, manufacturers, industry leaders, regulators, trainees, and patient and family partners from across the […]
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!
