Events

Name: Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
Start: 2025-03-31T08:30:00-05:00
End: 2025-03-31T09:30:00-05:00

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.

Healthcare

February 2025
February 6 @ 4:00 pm - 5:00 pm

Diagnosis and Treatment of Nodopathies
February 13 @ 4:00 pm - 5:00 pm

Multifocal motor neuropathy (MMN): diagnosis, treatment and update on biomarkers
February 14 @ 8:00 am - February 15 @ 5:00 pm

PKU CON 2025

milan, italy Milan, Italy

PKU CON aims to bring together all stakeholders from around the globe currently involved in the management of patients affected by this inborn error of metabolism with an unique and […]
February 20 @ 4:00 pm - 5:00 pm

Electrodiagnostic Patterns in Immune-Mediated Neuropathies
February 24 @ 8:00 am - February 26 @ 5:00 pm

2025 Clinical Trials Training Summit
March 2025
March 16 @ 8:00 am - March 19 @ 5:00 pm

MDA Clinical and Scientific Conference
March 17 @ 6:00 pm - 7:30 pm

NMOSD in sub-Saharan Africa

The experts will provide insights and answer questions about the prevalence and incidence of NMOSD, diagnostics, available treatments, immunizations, clinical trials, and more. Patients, caregivers, clinicians, researchers, and advocates from […]
March 20 @ 4:00 pm - 5:00 pm

Peripheral Nerve Imaging with Focus on Inflammatory Neuropathies
March 23 @ 8:00 am - March 26 @ 5:00 pm

13th ISNS European Regional Meeting Luxembourg

Newborn Screening LIVE from the Heart of Europe
March 27 @ 10:00 am - 11:00 am

Dragon Claw Friends Webinar – Breaking Down Barriers – Are Patients Aware of Their Autoimmune Disease Treatment Options?

Despite significant advancements in the treatment of autoimmune diseases, many patients remain unaware of their options. Social media platforms are filled with stories of people struggling with uncontrolled symptoms—so why […]
March 27 @ 4:00 pm - 5:00 pm

Navigating Life with Dysimmune and Inflammatory Neuropathies: Q&A Session on Quality of Life and Management
March 31 @ 8:30 am - 9:30 am

Understanding what matters to children and families: The socioeconomic impact of childhood arthritis

This presentation will share findings from the Health Economics research lead by Dr. Marshall as part of the international UCAN CAN-DU and CURE research program on childhood arthritis.