Child Health Hub in Transition to Adult Healthcare
The Child Health Hub in Transition to Adult Healthcare is excited to be hosting the 2nd Transition to Adulthood Pop-Up event on December 2-3, 2023, at the beautiful Hyatt Regency […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Healthcare
-
-
-
Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
Le Centre Sheraton Montreal Montreal, Quebec, CanadaEarlier this year, NMD4C, MDC and Quebec SMA Network hosted the first interactive training session for French-speaking physiotherapists and occupational therapists on assessment measures and practices for Spinal Muscular Atrophy (SMA). […]
-
Accessing Data through DASH
Learn how HDRN Canada's Data Access Support Hub (DASH) can help health researchers access multi-regional data.
-
-
ALS Canada Webinar: Exploring Holistic Therapies
Join ALS Canada and a panel of presenters for the ALS Canada Webinar: Exploring Holistic Therapies to learn about various holistic therapies and techniques including Reiki, deep breathing, intuitive energy […]
-
-
CPD-Accredited Webinar | Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges, opportunities and consideration of a possible cholesterol metabolism-related target
NMD4C and MDC are pleased to invite you to a webinar on Exploring the clinical trial landscape in Duchenne muscular dystrophy: Challenges, opportunities and consideration of a possible cholesterol metabolism-related […]
-
CIHI-Foundations of Patient Partnering Virtual Sessions
Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts, participate in skill-building activities, and network with other patient […]
-
TREAT-NMD Myotonic Dystrophy Type 1 (DM1) Expert Masterclass
Registrations are now open for our virtual DM1 Expert Masterclass on 16th January 2025, chaired by Nicholas Johnson and Benedikt Schoser. This event is designed for healthcare providers involved in […]
-
2025 International Scientific Conference on Albinism
The Global Albinism Alliance (GAA) is very pleased to announce the 2025 International Scientific Conference on Albinism – ISCA 2025, that will be held virtually on January 21-24, 2025. ISCA is THE meeting point worldwide […]
-
Challenges in the Diagnosis and Treatment of Inflammatory Neuropathies
Delivered by Dr. Filip Eftimov (University Medical Center of Amsterdam, the Netherlands) & Jean-Philippe Plançon (EPODIN – European Patient Organisation for Dysimmune and Inflammatory Neuropathies, France), January 23rd 2025 at […]
-
CIHI-Foundations of Patient Partnering Virtual Sessions
Calling all patient and family partners! Are you interested in attending a training session to learn about foundational patient engagement concepts, participate in skill-building activities, and network with other patient […]
-
The Festival of Genomics & Biodata London
The UK’s largest life sciences event is back! Now celebrating its 10th year, the Festival has long been the annual get-together for the UK genomics community. And with more speakers and […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!