
Patient Stories
Advocating for Access to Orphan Drugs: Beth and Madison Vanstone’s Story
The inspiring journey of Madison and Beth Vanstone, tirelessly advocating for public funding for the first cystic fibrosis modulator in Canada.
Discover inspiring and informative stories of individuals living with rare diseases in Canada.

The inspiring journey of Madison and Beth Vanstone, tirelessly advocating for public funding for the first cystic fibrosis modulator in Canada.

The courageous story of Sylvie Tress, navigating multiple painful conditions and the impact of late diagnosis on her health, while finding strength and purpose in advocacy.