Events

Name: PHA-Medical Think Tank
Start: 2025-09-11T08:00:00-04:00
End: 2025-09-12T17:00:00-04:00

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.

Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.

August 2025
August 27 @ 12:00 am

Webinar: Patient Partnership 2025 – The Lupus100 Project

Co-developed by ERN ReCONNET and LUPUS EUROPE, The Lupus100 Project is a multilingual resource based on real patient questions about lupus, turning a national patient booklet into a Europe-wide, medically validated information tool. Speakers Eric Hachulla (clinician, ERN ReCONNET), Jeanette Andersen (patient representative, ERN ReCONNET), and Zoe Karakikla-Mitsakou (General Secretary, Lupus Europe) will share how meaningful collaboration […]
August 28 @ 6:00 am - 7:30 am

WHA Resolution Coalition Webinar: Turning the WHA Resolution on Rare Diseases into Action

This Coalition webinar will further discuss the formalization of the Coalition as well as the updates and next steps in the implementation of the WHA Resolution on Rare Diseases and the development of the Global Action Plan.
September 2025
September 3 @ 8:00 am - September 4 @ 5:00 pm

2025 RARE Drug Development Symposium

Rare disease patient advocates are taking the lead in research like never before, driven by the urgent need for new treatments. The RARE Drug Development Symposium hosted by Global Genes in partnership with Boston Children’s Hospital is designed to equip advocates with the knowledge, skills, and connections to navigate early-stage research with confidence. During this […]
September 4 @ 8:00 am - September 5 @ 5:00 pm

6th International Hypothalamic Hamartoma Symposium

Presented by Hope for HH and Hospital Sant Joan de Déu Barcelona, this symposium will gather leading experts, patients, and caregivers from around the world to share the latest research, clinical advances, and treatment strategies for Hypothalamic Hamartoma (HH)! Alexis Arzimanoglou and Helen Cross are part of the Symposium Committee.
September 4 @ 11:00 am - 12:00 pm

Back-to-School with PH: Q&A Session

Getting ready for a new school year can be exciting—but also challenging when pulmonary hypertension (PH) is part of the picture. Join in on Thursday, Sept 4 at 11:00 AM EST for a virtual round table with Janette Reyes, PH Pediatric Nurse at SickKids Hospital.
September 9 @ 8:00 am - September 10 @ 5:00 pm

Rare Trials Summit

Bringing together key stakeholders in the clinical research community to accelerate the development of new rare disease therapies from average 10-12 years to under 3 years.
September 9 @ 8:00 am - September 11 @ 5:00 pm

2025 C-Path Global Impact Conference

As C-Path celebrates its 20th anniversary, CGIC 2025 stands out as a milestone event—bringing together a global community dedicated to advancing medical innovation and improving patient outcomes. Whether you're joining us from industry, regulatory agencies, academia, patient organizations, or as someone with lived experience, you’ll find valuable insights, thought-provoking discussions, and meaningful opportunities to collaborate.
September 9 @ 8:00 am - September 12 @ 5:00 pm

PxP2025

The PxP (For Patients, By Patients) conference will be September 9-11 (for those in Europe, Africa or North and South America), or 10-12 (Asia and Oceania). This free, virtual event aims to bring you a wealth of knowledge, skills and resources on Patient Engagement in health research.
September 10 @ 8:00 am - September 12 @ 5:00 pm

PCSI 2025

From September 10 to 12, 2025, the 37th PSCI conference will be held at the Quebec City Convention Centre under the theme: "Patient Grouping as a Driver of Value in Health: The Patient at the Heart of Our Decisions." The topics will be: Innovations in case-mix, data and technology. Advancements in coding, classification systems, and data quality. Case-mix […]
September 10 @ 10:00 am - 11:00 am

IMPaCT Webinar: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network

Speakers: Tannis Erickson & Naveen Poonai Title: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network
September 11 @ 8:00 am - 5:00 pm

2025 NMD4C Annual Meeting

Registration is now open for the 2025 NMD4C Annual Meeting! Join NMD4C in Ottawa on Thursday, September 11, for a full day of dynamic discussions, research updates, and networking opportunities—just ahead of the 7th Ottawa International Conference on Neuromuscular Disease & Biology.
September 11 @ 8:00 am - September 12 @ 5:00 pm

PHA-Medical Think Tank

Join Canada’s premier CPD event on pulmonary hypertension, co-developed by PHA Canada and the Canadian Thoracic Society, including: · Keynote presentations by Dr. Steven Kawut (University of Pennsylvania) and Athénaïs Boucly (University of Paris-Saclay) · Presentations on pulmonary hypertension topics from diagnosis through treatment · Updates on pulmonary hypertension research. September 11 & 12 in […]