Biennial National Conference
Registration information coming soon.
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
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National Day for Truth and Reconciliation
Orange Shirt Day is an opportunity to honour survivors and raise awareness of the lasting impacts of residential schools. It's also a time to celebrate the resilience of Indigenous Peoples and to nourish our shared commitment to reconciliation. The Indigenous Health Program will host a film screening and hold space with guest speakers and performers […]
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Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights, and cGMP Gene Therapy Manufacturing capabilities in Canada
The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on the 2024 event titled “Canadian Rare Disease Ecosystem Symposium: Genetic Therapies for Rare Disease”, SCN and NRC are pleased to invite you to the Canadian […]
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CAGC & CCMG Joint Conference
The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise, all sharing a common interest in education and advocating for best practices in clinical and laboratory genetics. Through presentations, workshops, breakout sessions, abstract sessions, and engagement with industry partners, the event propels forward […]
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Connected Minds: Exploring the Intersection of Brains, Machines & Society
Explore the future of tech, health & society at the Connected Minds Conference 2025, where ideas ignite and innovation thrives!
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Global Alliance for Genomics and Health (GA4GH) 13th Plenary
GA4GH 13th Plenary will bring together the global genomics and health community for workshops, presentations, and keynote talks that uncover opportunities to scale genomic and clinical data sharing.
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30th Annual International Congress of the World Muscle Society
The World Muscle Society is a dynamic community that aims to promote, disseminate, and share all aspects of neuromuscular physiology and diseases, from basic science to patient care. It encompasses a broad range of scientists and healthcare professionals who share the common interest for neuromuscular disorders.
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A Conversation About Patient Partner Outsider Syndrome
Patient/caregiver partnership in health research has evolved substantially since the launch of Canada’s Strategy for Patient-Oriented Research (SPOR) over a decade ago. However, findings from the Patient Advisors Network (PAN) "Reimagining the Research Landscape" report, commissioned by CIHR in 2024 for the SPOR Refresh, revealed that patient/caregiver partners often feel like outsiders in the research […]
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2nd Canadian Symposium on Neurofibromatosis
This Symposium is aimed at the patients and families, as well as clinicians and health professionals (doctors, nurses, researchers).
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Aging Out: Transition of care for children with rare neurodevelopmental disorders
Approximately one in 12 Canadians are affected by a rare disorder and two thirds of them are children, according to the Canadian Organization for Rare Disorders (CORD). Due to the low number of individual cases, qualified specialists are hard to find. After years of assembling a trusted pediatric care team, parents are often faced with […]
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RareKids-CAN Coffee Chat: Digital Storytelling with Krystle Schofield
Join other parents, caregivers, and individuals impacted by rare diagnosis and rare disease on October 16 at 8 P.M. EST. and learn about digital storytelling. Learn from Krystle Schofield, a RareKids-CAN parent partner, B.C. mom, digital storytelling facilitator + photographer.
Share your Event
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HERE!