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Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
The important elements of the Medicine Wheel” with Dr. Terri-Lynn Fox
This session will provide a brief overview of the medicine wheel, why it is important, and how it supports emotional, spiritual, mental, and physical health and healing. Led by Dr. Terri-Lynn Fox , Indigenous Scholar on Indian Residential Schools and Truth and Reconciliation, this 75-minute session includes a presentation and will be followed by a […]
Western Canadian Neuromuscular Conference (WCNMC)
Hotel Arts Calgary Calgary, Alberta, CanadaThis is the 5th WCNMC and is being held in Calgary on September 27 – 29, 2024. The conference has rotated locations in Western Canada with the inaugural conference hosted in Calgary in 2013. This weekend conference is designed for general neurologists, neuromuscular specialists, physical medicine and rehabilitation specialists, trainee physicians with interest in Neuromuscular […]
4th International Symposium on Arthrogryposis
The International Symposium on Arthrogryposis provides a platform for learning and exchanging on the clinical management and research in Arthrogryposis Multiplex Congenita (AMC) in the areas of genetics, orthopedics, and rehabilitation. Multisite collaborations are key to advance research initiatives and standardize practice across centers.
4th Regional Meeting on ITP – PDSA Canada
The Courtyard Marriott Burlington Burlington, Ontario, CanadaOn September 29, 2024, the 4th annual Canadian Regional Meeting will take place in Burlington, ON, for patients and families affected by ITP. The event will be held at the Courtyard Marriot. This meeting is a chance to meet other Canadian ITP patients and learn from Canadian ITP experts. If you are interested in registering […]
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National Day for Truth and Reconciliation
Each year, September 30 marks the National Day for Truth and Reconciliation. The day honours the children who never returned home and Survivors of residential schools, as well as their families and communities. Public commemoration of the tragic and painful history and ongoing impacts of residential schools is a vital component of the reconciliation process. […]
PxP Webinar 3 2024: Different opportunities to engage as a patient partner
The webinar series is all about patient engagement in health research, also known as patient and public involvement (UK) or consumer involvement (Australia). It is worth mentioning that ‘patient engagement’ in health research is distinctly different from signing up to be a research participant. Taking part in a study as a participant (for example trying […]
International Conference on Newborn Screening 2024
The 2024 meeting of the International Consortium on Newborn Sequencing (ICoNS) will be held in New York City, USA on October 9 – 10, 2024. ICoNS is the premier event for connecting with top experts and gaining insights into the frontier of newborn sequencing as screening for ushering in the era of preventive medicine.
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