Kids Brain Health Network (KBHN) Annual Conference
Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference, happening October 18–20, 2026, in Calgary, Alberta!

Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference, happening October 18–20, 2026, in Calgary, Alberta!
EURORDIS is excited to introduce their 2027 heroes and unveil their new campaign materials. These webinars will also provide practical guidance and inspiration to help you plan impactful campaign activities in your country or community. They are hosting two identical sessions on Monday 19 October 16:00 CEST and the next is Tuesday 20 October 09:00 […]
Join in Montréal (or online) on October 19–20, 2026 for the second AEG2C Symposium. This event will bring together researchers, trainees, community partners, and patients to advance equity in genetics and genomics research across Canada and beyond. This symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine, CIHR […]
Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for their financial future.
Shape the future of rare disease treatments, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
The World Orphan Drug Congress is Europe's largest and most established orphan drug & rare disease meeting. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create groundbreaking progress.
IMPaCT and RareKids-CAN are bringing Canada’s maternal, pediatric, and rare disease research communities together for a three-day national conference in Montréal.
Join the City of Toronto's Confronting Anti-Black Racism Unit, the Sickle Cell Awareness Group of Ontario, and Canadian Blood Services for two connected events focused on sickle cell disease (SCD) and the inequities that continue to shape Black experiences of health care.
The Till & McCulloch Meetings (TMM), hosted by the Stem Cell Network, is Canada’s premier stem cell and regenerative medicine research event, bringing together stem cell and regenerative medicine scientists, clinicians, bioengineers, and ethicists, as well as representatives from industry, government, health, and non-profit sectors from Canada and abroad.
A great opportunity to learn about the latest advancements in ARSACS research. This conference is sponsored by the Ataxia Charlevoix- Saguenay Foundation. The symposium, a scientific conference, is a satellite meeting of the 2026 ICAR Conference and is scheduled to begin the day before the start of ICAR.
From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
La CARES vous donne rendez-vous les 12 et 13 novembre 2026, à Québec, pour deux journées de rencontres, de partage et de réflexions autour de la santé en régions rurales et éloignées.
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!