EP PerMed Hackathon
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12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Events
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Stem Cell Network: Clinical Translation in Cell and Gene Therapy
Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation, offering trainees, early-career investigators, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.
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McMaster University Workshop-Measuring the Impacts of Engaging People with Lived and Living Experience
Join this in-person workshop focused on how to measure and evaluate the impacts of engaging people with lived and living experience in health research, systems, and policy. The session will share practical approaches, real-world case examples, and lessons learned from engagement evaluation. Participants will learn how to select and apply evaluation tools to measure impact […]
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Rare Kidney Disease Foundation: 5th International ADTKD Summit
The Rare Kidney Disease Foundation presents: RKDF 5th International ADTKD Summit - A Time For Action Friday, March 6, 10AM - 1:00PM EST - Science Program Saturday, March 7, 10AM - 1:00PM EST - Patient Program
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RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
Are you a rare disease methodologist, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11. Learn what expert elicitation is, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.
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CAN-Child: F-words Foundations Workshop
Join CAN-Child's interactive 3-hour F-words Foundations Workshop and explore how to bring the F-words for Child Development—Functioning, Family, Fitness, Fun, Friends, and Future—into everyday practice and life!
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Palliative care for leukodystrophies and other rare neurological diseases (pediatric focus)
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
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Rare Disease Summit: Access USA
The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning, market access, reimbursement strategies and strategic partnerships to optimize rare disease commercialization and elevate patient impact.
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Rare Diseases International-Global Perspectives on Rare Disease Centers: What We Learned from Case Studies
Join RDI for a public webinar exploring how rare disease centers are organized and how they function in practice across different countries and health system contexts. Rare disease centers play a critical role in improving diagnosis, care coordination, research, and access to treatment for people living with rare diseases. Yet, their structures, levels of recognition, […]
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MAINFRAME Symposium on AI-Driven Small-Molecule Drug Discovery
Co-organized by Conscience in partnership with The Structural Genomics Consortium (SGC) and local organizers at the Vall d’Hebron Institute of Oncology (VHIO), the Barcelona Supercomputing Center (BSC), and the Institute of Research in Biomedicine (IRB), this two-day in-person symposium will bring together the global community working at the intersection of artificial intelligence, computational chemistry, and […]
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RAREDIG McGill: Rare Disease Day 2026
McGill’s RareDIG is excited to welcome you to the eighth edition of Rare Disease Day! Millions of individuals are affected by rare diseases worldwide and Rare Disease Day is hosted in support of these patients and family members. Students, researchers, physicians, patients, and community members will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) […]
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CIHR Café Scientifique: Chronic Pain and Primary Care
Join on Zoom for a free CIHR Café Scientifique! | March 18 @ 6:00 pm MST Together you’ll explore what chronic pain looks like for young people and their families, how pain can occur across generations, and why quality care in our communities matters.
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!