RQMO: 4th Zebinary of the Month of Zebra 2026
Speaker: - Jacques P. Tremblay, Ph.D, Full Professor, Department of Molecular Medicine, Faculty of Medicine, Université Laval
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Events
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Ataxia Canada Webinar- Income Tax Reduction and Estate Tax Elimination
You will learn: ➡️ To minimize or even Eliminate Taxes on your estate. ➡️ How to Change your Estate Plans in this virtual environment. ➡️ To Avoid Double Taxation on your “Red” retirement accounts. ➡️ To Bypass paying upfront Capital Gains Taxes when selling your investments. ➡️ To convert assets into an Income You Can’t […]
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RQMO: 5th Zebinary of the Month of Zebra 2026
Speakers: - Christine Yergeau, Msc, RARE Network Manager. QC - Lilit Antonyan, Research Pillars Coordinator at RARe.qc
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Cassie&Friends: Rare Talks-When Answers Take Time: Real Lives, Rare Disease, and Support That Matters
Held during Rare Disease Month, this annual virtual event brings together families, youth, and the broader childhood rheumatic disease community to make rare experiences visible—and to remind families that they are not alone. Through shared stories, trusted information, and meaningful connection, RareTalks offers support for every stage of the journey, from first symptoms to long-term care.
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RQMO: 6th Zebinary of the Month of Zebra 2026
Speaker: - Josée Chénard, TS, PH.d, Professor, Department of Social Work, Université du Québec en Outaouais
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Canada’s Drug Agency: How Global Policy Changes Are Reshaping HTA for Rare Diseases
HTAi’s Rare Disease Interest Group will celebrate 2026 Rare Disease Day with a conversation on how global policy changes are reshaping HTA processes for rare disease technologies. The webinar aims to update the global HTA community on recent advances in rare disease policy, particularly following the adoption of the World Health Assembly (WHA) Resolution on […]
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Rare Disease Day 2026: Advancing the Rare Brain Disease Ecosystem
Placing brain health at the core of rare brain disease prevention and management, this event gathers multidisciplinary experts from research, clinical care, patient advocacy, and industry to share perspectives and priorities on the rare brain disease research, care, and policy space. The meeting will focus on reviewing key developments in regulatory frameworks and discussing strategies […]
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RQMO: 7th Zebinary of the Month of Zebra 2026
Speakers: - Kim Auclair, consultant, speaker and blogger - Elsie Côté, Founder and President of Sirote-moi
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PhenoTips: Matchmaking for Rare Disease Diagnosis
Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers, Dr. Nara Sobreira, Matthew Osmond, CGC, and Dr. Orion Buske.
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RQMO: Last Zebinary of the Month of Zebra 2026
Speaker: - François Bernier, entrepreneur, strategist, co-founder of Horizon b2b
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CORD Rare Disease Day 2026 Webinar
ACCELERATED ACCESS TODAY, DEMONSTRATING VALUE FOR 2026 AND BEYOND This Rare Disease Day, join CORD for a 1-hour webinar marking the first 1.5 years of Canada’s Rare Disease Drug Strategy (RDDS). The session celebrates progress in accelerated access while focusing on what comes next: demonstrating value.
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Massey College: Rare Disease Day
This Rare Disease Day, Massey College is the Massey community to join us for a special Fireside Chat on an issue that touches more lives than many realize. Lindy Forte, Mai K., Catherine Stratton, MPH, and Ian Stedman will share brief opening reflections from their respective perspectives on rare diseases. Together, they’ll explore how we […]
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