Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
The Rare Kidney Disease Foundation presents: RKDF 5th International ADTKD Summit - A Time For Action Friday, March 6, 10AM - 1:00PM EST - Science Program Saturday, March 7, 10AM - 1:00PM EST - Patient Program
Are you a rare disease methodologist, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11. Learn what expert elicitation is, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.
The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning, market access, reimbursement strategies and strategic partnerships to optimize rare disease commercialization and elevate patient impact.
Co-organized by Conscience in partnership with The Structural Genomics Consortium (SGC) and local organizers at the Vall d’Hebron Institute of Oncology (VHIO), the Barcelona Supercomputing Center (BSC), and the Institute of Research in Biomedicine (IRB), this two-day in-person symposium will bring together the global community working at the intersection of artificial intelligence, computational chemistry, and […]
McGill’s RareDIG is excited to welcome you to the eighth edition of Rare Disease Day! Millions of individuals are affected by rare diseases worldwide and Rare Disease Day is hosted in support of these patients and family members. Students, researchers, physicians, patients, and community members will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) […]
The premier gathering for childhood-onset SPG4 research returns in 2026 — uniting leading scientists, clinicians, industry innovators, patient advocates, and families for three days of focused collaboration. Designed to accelerate the path from discovery to treatment, the symposium will feature experts from across the U.S. and abroad, offering a rare opportunity to share knowledge, align […]
The event will take place in the Cruess Amphitheatre and the Elspeth McConnell Atrium at the Research Institute of the McGill University Health Centre (RI-MUHC) in Montréal, and will also be offered in a virtual format.
NMD4C, MDC, and Defeat Duchenne Canada are pleased to invite you to a CPD-accredited webinar on Duchenne Muscular Dystrophy in the Evolving Steroid Era: Practical Neuromuscular and Endocrine Considerations. This CPD-accredited webinar is primarily targeted at Canadian clinicians, academics and trainees with an interest in neuromuscular diseases.
This 3rd NIH Symposium on autoinflammatory and immunedysregulatory diseases marks a unique occasion to honor Dr. Dan Kastner, the founding father of autoinflammation, for his invaluable contributions in establishing and advancing the field.
Join the leading international drug repurposing conference to explore the future of patient-centric medicines repurposing. From rare diseases and AI-driven drug discovery, to policy, funding and community-led success stories, iDR26 brings together the global drug repurposing community to navigate the next chapter in maximising patient benefit.
The event will now make a stop in Canada, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec. A unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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