Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
HTAi’s Rare Disease Interest Group will celebrate 2026 Rare Disease Day with a conversation on how global policy changes are reshaping HTA processes for rare disease technologies. The webinar aims to update the global HTA community on recent advances in rare disease policy, particularly following the adoption of the World Health Assembly (WHA) Resolution on […]
Placing brain health at the core of rare brain disease prevention and management, this event gathers multidisciplinary experts from research, clinical care, patient advocacy, and industry to share perspectives and priorities on the rare brain disease research, care, and policy space. The meeting will focus on reviewing key developments in regulatory frameworks and discussing strategies […]
Speakers: - Kim Auclair, consultant, speaker and blogger - Elsie Côté, Founder and President of Sirote-moi
Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers, Dr. Nara Sobreira, Matthew Osmond, CGC, and Dr. Orion Buske.
Speaker: - François Bernier, entrepreneur, strategist, co-founder of Horizon b2b
ACCELERATED ACCESS TODAY, DEMONSTRATING VALUE FOR 2026 AND BEYOND This Rare Disease Day, join CORD for a 1-hour webinar marking the first 1.5 years of Canada’s Rare Disease Drug Strategy (RDDS). The session celebrates progress in accelerated access while focusing on what comes next: demonstrating value.
This Rare Disease Day, Massey College is the Massey community to join us for a special Fireside Chat on an issue that touches more lives than many realize. Lindy Forte, Mai K., Catherine Stratton, MPH, and Ian Stedman will share brief opening reflections from their respective perspectives on rare diseases. Together, they’ll explore how we […]
On February 28th, from 10 a.m. to 4 p.m., we invite you to participate in the RQMO 2026 International Rare Disease Day. The event will be held in hybrid mode, meaning that it will be possible to attend in person or virtually.
This is your chance to be a part of an immersive event at the forefront of innovation in personalised medicine. Join ER PerMed and work together with experts, innovators, and visionaries to shape the future of healthcare.
Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation, offering trainees, early-career investigators, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.
Join this in-person workshop focused on how to measure and evaluate the impacts of engaging people with lived and living experience in health research, systems, and policy. The session will share practical approaches, real-world case examples, and lessons learned from engagement evaluation. Participants will learn how to select and apply evaluation tools to measure impact […]
The Rare Kidney Disease Foundation presents: RKDF 5th International ADTKD Summit - A Time For Action Friday, March 6, 10AM - 1:00PM EST - Science Program Saturday, March 7, 10AM - 1:00PM EST - Patient Program
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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