Genetic Rare Immune Disorders Symposium (GRIDS)
GRIDS brings together world renowned experts from across the globe to discuss recent developments and unique challenges in the field of lysosomal storage disorders and/or rare genetic diseases.
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Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
The Role of Genetic Counselors in Genomic Mainstreaming
The Role of Genetic Counselors in Genomic Mainstreaming is an international panel discussion and interactive Q & A with Demetra Georgiou, Genomic Transformation Manager at Imperial College Healthcare NHS Trust, Jill Stopfer, Associate Director of Genetic Counseling at the Dana Farber Cancer Institute, and Laura Hercher, Director of Student Research at Sarah Lawrence College Human […]
‘Differential diagnosis aside from neuroimaging for non-Leukodystrophy white matter diseases’ by Nicole Wolf
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
Organoid Symposium & Workshop
Stem Cell Network is excited to partner with the University of Toronto’s Applied Organoid Core in delivering the 2024 Organoid Symposium: Generation and Applications of iPSC-Derived Organoid Models! Human pluripotent stem cell (hPSC)-derived organoid research offers unique opportunities to explore human disease, advance personalized drug discovery, and study complex biological processes such as development and […]
Child Health Hub in Transition to Adult Healthcare
The Child Health Hub in Transition to Adult Healthcare is excited to be hosting the 2nd Transition to Adulthood Pop-Up event on December 2-3, 2023, at the beautiful Hyatt Regency in downtown Vancouver. This event aims to bring together youth, families, trainees, researchers, clinicians, and policy/decision makers to celebrate the best of what we are […]
Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
Le Centre Sheraton Montreal Montreal, Quebec, CanadaEarlier this year, NMD4C, MDC and Quebec SMA Network hosted the first interactive training session for French-speaking physiotherapists and occupational therapists on assessment measures and practices for Spinal Muscular Atrophy (SMA). To complement this training session, the NMD4C will be hosting an English-language interactive training workshop on standardizing assessment practices in SMA outcome measures. This workshop […]
IPNA Webinar: Nutritional management during AKI
The webinar will discuss the current recommendations on nutritional management among children suffering from acute kidney injury.
Duchenne Patient Academy 2024!
This year, the 8th edition of Duchenne Patient Academy will take place. The Academy provides online training for Duchenne and Becker muscular dystrophy (DMD/BMD) patient advocates. Duchenne Patient Academy 2024 will take place on Friday December 6, and Saturday December 7 fully online. Over the course of 2 days, Duchenne Patient Academy attendees will listen to […]
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
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HERE!