Healthy Living and Aortopathy
Save the date for your upcoming webinar with Dr. Nathaniel Moulson, focused on exercise. This webinar will take place on January 22, 2026 at 7:00pm, registration details to be released […]
12 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Webinars
Events
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PiPER Community of Practice for 2026
Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.
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Canada’s Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
Join CDA's preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. You will hear from their senior leaders how these plans will advance our […]
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CMT episode 4: Current Progress in Charcot-Marie-Tooth disease (CMT) Treatments
Delivered by Prof. Kleopas Kleopa (Cyprus Institute of Neurology and Genetics (CING), Thu 29 Jan 2026 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare […]
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CATALIS-Clinical Research 101: Webinar 2
Webinar 2 on January 29, 2026 from 6 pm to 6:30 pm
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Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life – Clinical Trials 101 What Every Patient Should Know Before Enrolling
Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process, benefits, and important considerations before enrolling.
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RQMO: 1st Zebinary of the Month of Zebra 2026
1st Zebra of the Month of Zebrier 2026 of the RQMO Speakers: - Dr. Roberta, La Piana, Assistant Professor, Department of Neurology and Neurosurgery, McGill University - Dr. Thomas Durcan, […]
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RealiseD Webinar 3: Single arm, RCT or something in between – how to enrich clinical trial design and analysis in rare diseases
Single-arm trials remain a cornerstone of rare disease research, but their limitations and complexities cannot be ignored. In the third webinar, experts Yulia Dyachkova (Merck Healthcare), Jenny Devenport (Roche), Cornelia […]
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D2R-Webinar | Anti-Black Racism in Health Research
In honour of Black History Month, D2R invites you to an interactive webinar on “Anti-Black Racism in Health Research.” This session will explore the history of slavery in Canada, trace the evolution […]
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RareKids-CAN- From Evidence to Access: Advancing Pediatric Rare Disease Drug Availability in Canada
Join RareKids-CAN for an in-depth discussion on the evolving role of health technology assessment and reimbursement policy in improving access to pediatric rare disease care.
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RQMO: 2nd Zebinary of the Month of Zebra 2026
Speaker: Dr. André Megarbane, Professor, Department of Human Genetics, lebanese American University, Beirut, Lebanon
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OSSU World Café Conversations Series:”Find and Seek: Conversations on Matching Researchers and Lived Experience Partners”
OSSU World Café Conversations series with Maureen Smith🇨🇦, Aleisha F. and supported by Ontario SPOR SUPPORT Unit (OSSU): "Find and Seek: Conversations on Matching Researchers and Lived Experience Partners"
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HERE!