CIHR Café Scientifique: Chronic Pain and Primary Care
Join on Zoom for a free CIHR Café Scientifique! | March 18 @ 6:00 pm MST Together you’ll explore what chronic pain looks like for young people and their families, […]
11 events found.
Events
Welcome to our Events Calendar! Stay up-to-date with the latest happenings in the rare disease community in Canada and beyond. From webinar and conferences to workshops and other events, our calendar is your one-stop destination for all rare disease-related happenings. Explore upcoming events, mark your calendar, and join as we work together to make a difference in the lives of those affected by rare diseases.
Watch our walkthrough videos in English and French for guidance navigating the calendar HERE.
Virtual
Events
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People’s Perspectives: Living with Loeys-Dietz Syndrome
For the first time, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk […]
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PiPER Community of Practice: Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience
Save the date on *March 25th 2026* for a dynamic session entitled "Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience".
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Gene Therapy for IEI: It’s Taken Us So Long ‘Cause We’ve Got So Far To Come
Moderated by Dr. Jordan Orange, this important conversation will explore the progress, promise, and future of gene therapy for Inborn Errors of Immunity.
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CPD-Accredited Webinar | Duchenne Muscular Dystrophy in the New Steroid Age: Practical Considerations
NMD4C, MDC, and Defeat Duchenne Canada are pleased to invite you to a CPD-accredited webinar on Duchenne Muscular Dystrophy in the Evolving Steroid Era: Practical Neuromuscular and Endocrine Considerations. This […]
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ALS Clinical Trials Unboxed
On Friday, April 10, at 1:00 p.m. ET, tune into ALS Clinical Trials Unboxed to learn about ongoing ALS clinical trials in Canada and globally for people living with ALS. […]
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CHILD-BRIGHT Network EDI-DI Youth Empowerment Program Knowledge Mobilization Showcase
Over the past few weeks, youth from across Canada have come together to explore equity, diversity, inclusion, decolonization, and Indigenization in brain-based developmental disability research. Now, they are ready to […]
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Ontario Rare Action Group Information Meeting
Join the Ontario Rare Action Group information meeting April 21, 2026. They will be talking to you about what they've been up to the last month and how the community […]
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Building Business Cases for Genomics
In this panel discussion and interactive Q & A with Dr. Colleen Campbell, Andrea Spencer, MBA, CHE, CMP (Prosci), Megan Trinkle-Knotts, and host DNA Today's Kira Dineen, MS, LCGC, CG(ASCP)CM, […]
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Innovative Financing for Rare Diseases
How can innovative financing approaches improve equitable access to diagnosis, treatment, and care for people living with rare diseases? Join RDI-International for a new webinar series bringing together health economists, policymakers, […]
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ALS Disrupt
A bold new meeting designed to bring together global leaders in #ALS for open, timely, and collaborative discussions that move the field forward.
Share your Event
Do you have an upcoming event, webinar, or conference relevant to the rare disease community in Canada? We’d love to feature it on this page!
Help us expand our calendar and ensure that rare disease happenings are accessible to all. Submit your event details
HERE!